I have retired from my clinical practice, so I am not able to offer individual advice. However, there are many dedicated professionals working in a variety of organisations who are available to help if you have questions or concerns.
This is a list of some of the websites that may help you to deal with your own questions and concerns. It isn’t comprehensive, is mainly UK-based, and there may be excellent services available to you that I am unaware of. I haven’t attempted to make this an exhaustive list, but it’s a place to start.
All of these links are run by organisations that will ensure that they are reasonably up-to-date. If you find other helpful websites, do compare their advice with the advice available through these links. If it looks similar, you have probably found something you can trust. If the information on unlisted sites is very different from those in this list, treat it with caution.
I hope you will find the advice you are looking for, and with it the peace of mind that makes our difficulties endurable.
Cruse is the UK’s leading bereavement charity. Their website includes information about their telephone helpline, their email support, and about grief and bereavement. There are ways to find help if you are grieving, and advice about supporting somebody else. Cruse also champions bereavement support in the workplace, offering advice to employers and training to ‘Bereavement First Aiders.’Visit website
Palliative care expert Dr Sammy Winemaker and her health system innovation expert colleague Dr Hsien Seow are on a mission. They want to level-up the power in consulting rooms, by giving patients and families the keys they need to get care, and conversations about their care, that work better for them. Sammy and Hsien want a revolution that empowers patients and families, and this is where it all begins.
This is the start of a movement: the movement towards patients and their supporters getting the right care, in the right place, at the right time – by getting themselves ‘in the know’ about their condition, its patterns and prognosis, their specific place in the time line, and the information they want at the time that they want it.
I’m a fan. But don’t take my word for it. Take a look at their website, and join the revolution.Visit website
This award-winning podcast and website is run by expert psychotherapist and grief guru Liz Gleeson. It’s a treasure-trove.
The podcast and many of the website’s other resources are free to access. Liz interviews experts, and the conversations are fascinating. Some experts are thought leaders in grief and bereavement, others are bereaved people whose testimony helps us all to normalise the many shapes grief can take. I’ve been her guest several times.
The Grief Training resources are a fantastic collection of teaching by international experts in grief, grief therapy, trauma work, end of life care and more. It’s a stunning collection that is available by subscription either as an individual or for an organisation: cost details are in the website.
Deciding Right offers some conversation prompts and a set of useful documents for recording decisions and preferences about your future care and treatment. It was designed and developed to provide shared information across all health and care settings in the North of England, where it has been a great success. Although these resources are on the Northern Cancer Alliance website, the resources apply to adults with any diagnosis or condition.
Resources include ways to record an Emergency Health Care Plan (EHCP), an Advance Decision to Refuse Treatment (ADRT), a Do Not Attempt Cardiopulmonary Resuscitation notice (DNACPR), and an Advance Statement of wishes and preferences. There are also two helpful decision-making records for professionals to help with correctly applying the Mental Capacity Act (MCA). The MCA applies to all adults who don’t have capacity for a decision under consideration in England and Wales.