Websites
I have retired from my clinical practice, so I am not able to offer individual advice. However, there are many dedicated professionals working in a variety of organisations who are available to help if you have questions or concerns.
This is a list of some of the websites that may help you to deal with your own questions and concerns. It isn’t comprehensive, is mainly UK-based, and there may be excellent services available to you that I am unaware of. I haven’t attempted to make this an exhaustive list, but it’s a place to start.
All of these links are run by organisations that will ensure that they are reasonably up-to-date. If you find other helpful websites, do compare their advice with the advice available through these links. If it looks similar, you have probably found something you can trust. If the information on unlisted sites is very different from those in this list, treat it with caution.
I hope you will find the advice you are looking for, and with it the peace of mind that makes our difficulties endurable.
This easy to use, interactive site walks users through some of the medical decisions that might face any of us in the future.
Families are always very grateful when a person they love has left clear instructions when difficult medical decisions need to be made.
This website provides a helpful way to get better informed, helps you talk to family and friends if you use it together, and gets you well informed before you talk to your own medical advisers about the care you might want.
I’m one of the designers of this site – we’ll modify it in response to user feedback, so please do click the ‘feedback’ tag at the top of the page to let us know how we can improve it. At this stage it can’t store any data, so you need to use it without closing. My advice is to go through its pages with a pal and a cup of tea!
Visit websiteIf you’ve been diagnosed with a terminal illness, or you’re supporting someone who has, we offer a range of information and support.
Visit websiteAt Macmillan, we know how a cancer diagnosis can affect everything. So we’re here to support you and help you take back some control in your life. From help with money worries and advice about work, to someone who’ll listen if you just want to talk, we’re here.
Visit websiteChild Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement.
Visit website